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Keywords: HeSANDA 

Secondary use of clinical trials data in health research: A Practical Guide

This document presents a theoretical framework for the use of clinical trials and other health data for secondary research purposes, which was derived from research papers, consultation with stakeholders and the research community.  Four overall scenarios for data reuse were identified; scenario...

Keywords: Secondary Data Use, Clinical Trials, Training Material, HeSANDA, Health Data Australia, HDA

Secondary use of clinical trials data in health research: A Practical Guide https://dresa.org.au/materials/secondary-use-of-clinical-trials-data-in-health-research-a-practical-guide This document presents a theoretical framework for the use of clinical trials and other health data for secondary research purposes, which was derived from research papers, consultation with stakeholders and the research community.  Four overall scenarios for data reuse were identified; scenario 1: evidence synthesis, scenario 2: secondary analyses, scenario 3: reproducibility, replication and validation, and scenario 4: education and methods development. contact@ardc.edu.au Secondary Data Use, Clinical Trials, Training Material, HeSANDA, Health Data Australia, HDA
HeSANDA & Health Data Australia FAQ

This document provides answers to common questions about the Health Studies Australian National Data Asset (HeSANDA), and the Health Data Australia (HDA), including the usage of the health data platform, sharing, contributing and accessing clinital trails data, governance, and potential risks. 

Keywords: HeSANDA, Frequently asked Questions, Health Data Australia, training material

HeSANDA & Health Data Australia FAQ https://dresa.org.au/materials/hesanda-health-data-australia-faq This document provides answers to common questions about the Health Studies Australian National Data Asset (HeSANDA), and the Health Data Australia (HDA), including the usage of the health data platform, sharing, contributing and accessing clinital trails data, governance, and potential risks.  contact@ardc.edu.au Australian Research Data Commons (type: Editor) Australian Clinical Trials Alliance (type: Editor) Melbourne Academic Centre for Health (type: Editor) Mental Health Node (type: Editor) The Queensland Node (type: Editor) Sydney Health Partners Node (type: Editor) Western Australia Node (type: Editor) Monash University and Monash Partners Node (type: Editor) Health Translation South Australia (type: Editor) National Cancer Cooperative Trials Groups (type: Editor) Northern Australia Node (type: Editor) HeSANDA, Frequently asked Questions, Health Data Australia, training material
HeSANDA Monash Node User Guides

This guide developed by the HeSANDA Monash node provides an overview for users of Health Data Australia (HDA).
HDA helps researchers discover and access health data. HDA is a registry and does not store the data itself but provides descriptions of the data from data owners' publishing partners....

Keywords: Health Data Australia, health data, data request, HDA, HeSANDA, data access

HeSANDA Monash Node User Guides https://dresa.org.au/materials/hesanda-monash-node-user-guides This guide developed by the HeSANDA Monash node provides an overview for users of Health Data Australia (HDA). HDA helps researchers discover and access health data. HDA is a registry and does not store the data itself but provides descriptions of the data from data owners' publishing partners. Using HDA, researchers can search these descriptions, find data of use to do their research, then request access to it. The request will be sent to the owner of the data to review. Data owners receive email notifications about new data requests and can then log into the HDA Data Request platform to review the request and determine whether access can be granted and then respond to the researcher requesting access. If the request is approved, the owner arranges for the researcher to be given access to the data. The dataset descriptions (‘metadata’) contained on HDA help researchers understand the kinds of data that exist and assess whether a dataset may be of value to their research, without the need to actually access the data. In addition to metadata, data owners provide other documentation describing the data they hold, such as study protocols and data dictionaries. Using HDA, researchers can search for data, save their searches, submit and manage data requests. Amany.Gouda-Vossos@ardc.edu.au Health Data Australia, health data, data request, HDA, HeSANDA, data access
HeSANDA Monash Node Workshop Content

Slide presentation for a HeSANDA workshop delivered on January 1, 2023, which provides the audience with a broad understanding of the HeSANDA program, including Health Data Australia (HDA). 
 
What is HeSANDA:
The Health Studies Australian Data Asset (HeSANDA) is a national program that makes...

Keywords: health data, clinical trials, HeSANDA, Health Data Australia

HeSANDA Monash Node Workshop Content https://dresa.org.au/materials/hesanda-monash-node-workshop-content Slide presentation for a HeSANDA workshop delivered on January 1, 2023, which provides the audience with a broad understanding of the HeSANDA program, including Health Data Australia (HDA).    What is HeSANDA: The Health Studies Australian Data Asset (HeSANDA) is a national program that makes health and medical research data easier to find. It facilitates access, sharing and reuse of research data. This results in a reduction in research waste, improvements in researcher collaboration, and an opppotunity ti answer new research questions. It aims to support more efficitent and effective research to help improve health outcome.   Amany.Gouda-Vossos@ardc.edu.au health data, clinical trials, HeSANDA, Health Data Australia