Secondary use of clinical trials data in health research: A Practical Guide
This document presents a theoretical framework for the use of clinical trials and other health data for secondary research purposes, which was derived from research papers, consultation with stakeholders and the research community. Four overall scenarios for data reuse were identified; scenario...
Keywords: Secondary Data Use, Clinical Trials, Training Material, HeSANDA, Health Data Australia, HDA
Secondary use of clinical trials data in health research: A Practical Guide
https://zenodo.org/records/12768050
https://dresa.org.au/materials/secondary-use-of-clinical-trials-data-in-health-research-a-practical-guide
This document presents a theoretical framework for the use of clinical trials and other health data for secondary research purposes, which was derived from research papers, consultation with stakeholders and the research community. Four overall scenarios for data reuse were identified; scenario 1: evidence synthesis, scenario 2: secondary analyses, scenario 3: reproducibility, replication and validation, and scenario 4: education and methods development.
contact@ardc.edu.au
Hunter, Kylie (orcid: 0000-0002-2796-9220)
Williams, Jonathan
Palacios, Talia
Tan, Aidan
Robledo, Kristy (orcid: 0000-0003-0213-7652)
Tjokrowidjaja, Angelina (orcid: 0009-0004-6570-9683)
Gouda-Vossos, Amany (orcid: 0000-0002-6142-9439)
Kang, Kristan (orcid: 0000-0002-2057-1033)
Seidler, Anna Lene (orcid: 0000-0002-0027-1623)
Secondary Data Use, Clinical Trials, Training Material, HeSANDA, Health Data Australia, HDA
HeSANDA & Health Data Australia FAQ
This document provides answers to common questions about the Health Studies Australian National Data Asset (HeSANDA), and the Health Data Australia (HDA), including the usage of the health data platform, sharing, contributing and accessing clinital trails data, governance, and potential risks.
Keywords: HeSANDA, Frequently asked Questions, Health Data Australia, training material
HeSANDA & Health Data Australia FAQ
https://zenodo.org/records/11075589
https://dresa.org.au/materials/hesanda-health-data-australia-faq
This document provides answers to common questions about the Health Studies Australian National Data Asset (HeSANDA), and the Health Data Australia (HDA), including the usage of the health data platform, sharing, contributing and accessing clinital trails data, governance, and potential risks.
contact@ardc.edu.au
Australian Research Data Commons
Australian Research Data Commons (type: Editor)
Australian Clinical Trials Alliance (type: Editor)
Melbourne Academic Centre for Health (type: Editor)
Mental Health Node (type: Editor)
The Queensland Node (type: Editor)
Sydney Health Partners Node (type: Editor)
Western Australia Node (type: Editor)
Monash University and Monash Partners Node (type: Editor)
Health Translation South Australia (type: Editor)
National Cancer Cooperative Trials Groups (type: Editor)
Northern Australia Node (type: Editor)
HeSANDA, Frequently asked Questions, Health Data Australia, training material
Astronomy Data And Computing Services - Upskilling the Australian astronomy community
The Astronomy Data And Computing Services (ADACS) initiative has been working with the Australian astronomy community for just over 3 years now. Our vision is to deliver astronomy-focused training, support and expertise to maximise the scientific return on investments in astronomical data &...
Keywords: astronomy, data skills, eresearch skills, skills, computational skills, training, skills gaps, astronomy-focused training, training material
Astronomy Data And Computing Services - Upskilling the Australian astronomy community
https://zenodo.org/records/4287748
https://dresa.org.au/materials/astronomy-data-and-computing-services-upskilling-the-australian-astronomy-community-57afa0b9-77da-4dc1-ad29-25089f19363d
The Astronomy Data And Computing Services (ADACS) initiative has been working with the Australian astronomy community for just over 3 years now. Our vision is to deliver astronomy-focused training, support and expertise to maximise the scientific return on investments in astronomical data & computing infrastructure.
During these last 3 years, we have delivered dozens of face-to-face, hands-on workshops and created several hours worth of online tutorial materials. This talk will focus on our journey to deliver this computational skills training to the community, exploring how we chose different delivery pathways and content, based both on community input as well as our professional expertise and understanding of existing skill gaps. Most importantly we will discuss our plans for the future and how we are working on actively including the community in developing new training material beyond the usual skills survey.
Come along to this talk if you would like to hear about a national effort to deliver computational skills training and would like to know more about potential new avenues to provide just-in-time training and how to collaborate with ADACS.
contact@ardc.edu.au
Lange, Rebecca (orcid: 0000-0002-9449-4384)
astronomy, data skills, eresearch skills, skills, computational skills, training, skills gaps, astronomy-focused training, training material
HeSANDA Monash Node User Guides
This guide developed by the HeSANDA Monash node provides an overview for users of Health Data Australia (HDA).
HDA helps researchers discover and access health data. HDA is a registry and does not store the data itself but provides descriptions of the data from data owners' publishing partners....
Keywords: Health Data Australia, health data, data request, HDA, HeSANDA, data access
HeSANDA Monash Node User Guides
https://zenodo.org/records/10275253
https://dresa.org.au/materials/hesanda-monash-node-user-guides
This guide developed by the HeSANDA Monash node provides an overview for users of Health Data Australia (HDA).
HDA helps researchers discover and access health data. HDA is a registry and does not store the data itself but provides descriptions of the data from data owners' publishing partners. Using HDA, researchers can search these descriptions, find data of use to do their research, then request access to it. The request will be sent to the owner of the data to review. Data owners receive email notifications about new data requests and can then log into the HDA Data Request platform to review the request and determine whether access can be granted and then respond to the researcher requesting access. If the request is approved, the owner arranges for the researcher to be given access to the data.
The dataset descriptions (‘metadata’) contained on HDA help researchers understand the kinds of data that exist and assess whether a dataset may be of value to their research, without the need to actually access the data. In addition to metadata, data owners provide other documentation describing the data they hold, such as study protocols and data dictionaries.
Using HDA, researchers can search for data, save their searches, submit and manage data requests.
Amany.Gouda-Vossos@ardc.edu.au
Monash Partners
Monash University
Health Data Australia, health data, data request, HDA, HeSANDA, data access
Successful data training stories from NCI
NCI Australia manages a multi-petabyte sized data repository, collocated with its HPC systems and data services, which allows high performance access to many scientific research datasets across many earth science domains.
An important aspect is to provide training materials that proactively...
Keywords: skills, training, eresearch skills, HPC training, domain-specific training, reproducible workflows, training material
Successful data training stories from NCI
https://zenodo.org/records/4287750
https://dresa.org.au/materials/successful-data-training-stories-from-nci-33f110e3-0c06-492e-9cc5-fa0f886ca1b8
NCI Australia manages a multi-petabyte sized data repository, collocated with its HPC systems and data services, which allows high performance access to many scientific research datasets across many earth science domains.
An important aspect is to provide training materials that proactively engages with the research community to improve their understanding of the data available, and to share knowledge and best practices in the use of tools and other software. We have developed multiple levels of training modules (introductory, intermediate and advanced) to cater for users with different levels of experience and interest. We have also tailored courses for each scientific domain, so that the use-cases and software will be most relevant to their interests and needs.
For our training, we combine brief lectures followed by hands-on training examples on how to use datasets, using working examples of well-known tools and software that people can use as a template and modify to fit their needs. For example, we take representative use-cases from some scientific activities, from our collaborations and from user support issues, and convert to Jupyter notebook examples so that people can repeat the workfIow and reproduce the results. We also use the training as an opportunity to raise awareness of growing issues in resource management. Some examples include a familiarity of the FAIR data principles, licensing, citation, data management and trusted digital repositories. This approach to both our online training materials and workshops has been well-received by PhD students, early careers, and cross disciplinary users.
contact@ardc.edu.au
Wang, Jingbo
skills, training, eresearch skills, HPC training, domain-specific training, reproducible workflows, training material
Accelerating skills development in Data science and AI at scale
At the Monash Data Science and AI platform, we believe that upskilling our research community and building a workforce with data science skills are key to accelerating the application of data science in research. To achieve this, we create and leverage new and existing training capabilities...
Keywords: AI, machine learning, eresearch skills, training, train the trainer, volunteer instructors, training partnerships, training material
Accelerating skills development in Data science and AI at scale
https://zenodo.org/records/4287746
https://dresa.org.au/materials/accelerating-skills-development-in-data-science-and-ai-at-scale-2d8a65fa-f96e-44ad-a026-cfae3f38d128
At the Monash Data Science and AI platform, we believe that upskilling our research community and building a workforce with data science skills are key to accelerating the application of data science in research. To achieve this, we create and leverage new and existing training capabilities within and outside Monash University. In this talk, we will discuss the principles and purpose of establishing collaborative models to accelerate skills development at scale. We will talk about our approach to identifying gaps in the existing skills and training available in data science, key areas of interest as identified by the research community and various sources of training available in the marketplace. We will provide insights into the collaborations we currently have and intend to develop in the future within the university and also nationally.
The talk will also cover our approach as outlined below
• Combined survey of gaps in skills and trainings for Data science and AI
• Provide seats to partners
• Share associate instructors/helpers/volunteers
• Develop combined training materials
• Publish a repository of open source trainings
• Train the trainer activities
• Establish a network of volunteers to deliver trainings at their local regions
Industry plays a significant role in making some invaluable training available to the research community either through self learning platforms like AWS Machine Learning University or Instructor led courses like NVIDIA Deep Learning Institute. We will discuss how we leverage our partnerships with Industry to bring these trainings to our research community.
Finally, we will discuss how we map our training to the ARDC skills roadmap and how the ARDC platforms project “Environments to accelerate Machine Learning based Discovery” has enabled collaboration between Monash University and University of Queensland to develop and deliver training together.
contact@ardc.edu.au
Tang, Titus
AI, machine learning, eresearch skills, training, train the trainer, volunteer instructors, training partnerships, training material
Data Fluency: a community of practice supporting a digitally skilled workforce
This presentation showcases the impact of the Monash Data Fluency Community of Practice upon digitally skilled Graduate Research students involved as learners and instructors in the program. The strong focus on building community to complement training, has fostered an environment of learning,...
Keywords: skills, training, eresearch skills, data skills, online learning, pedagogy, train the trainer, digitally skilled workforce, training material
Data Fluency: a community of practice supporting a digitally skilled workforce
https://zenodo.org/records/4287752
https://dresa.org.au/materials/data-fluency-a-community-of-practice-supporting-a-digitally-skilled-workforce-b911a1a8-0331-496e-95a6-0015a12acc34
This presentation showcases the impact of the Monash Data Fluency Community of Practice upon digitally skilled Graduate Research students involved as learners and instructors in the program. The strong focus on building community to complement training, has fostered an environment of learning, networking and sharing of expertise. Hear what the Graduate research students have to say about the value of skills training and how it has impacted their research; how the community has enabled them to network with a broad range of researchers and affiliate partner groups they would not ordinarily be in contact with; how their research journey has been enhanced by working as part of a multi-disciplinary team, as well as sharpening their teaching skills.
The rapid refocus from face - face to online delivery, as a result of the pandemic, highlights the importance of the multi-faceted online approach including workshops, drop-in sessions, SLACK chat and online learning resources. As a result of the shift to online, the range of strategic external partner/affiliate groups has extended and demand for workshops and drop-ins has increased. Learn how the instructors have altered their pedagogical approach to engage workshop and drop-in participants; how they have overcome some of the challenges of facilitating in an online environment; and how this is preparing them to become part of a digitally skilled workforce.
contact@ardc.edu.au
Groenewegen, David (orcid: 0000-0003-2523-1676)
skills, training, eresearch skills, data skills, online learning, pedagogy, train the trainer, digitally skilled workforce, training material
ARDC Skills Landscape
The Australian Research Data Commons is driving transformational change in the research data ecosystem, enabling researchers to conduct world class data-intensive research. One interconnected component of this ecosystem is skills development/uplift, which is critical to the Commons and its...
Keywords: skills, data skills, eresearch skills, community, skilled workforce, FAIR, research data management, data stewardship, data governance, data use, data generation, training material
ARDC Skills Landscape
https://zenodo.org/records/4287743
https://dresa.org.au/materials/ardc-skills-landscape-56b224ca-9e30-4771-8615-d028c7be86a6
The Australian Research Data Commons is driving transformational change in the research data ecosystem, enabling researchers to conduct world class data-intensive research. One interconnected component of this ecosystem is skills development/uplift, which is critical to the Commons and its purpose of providing Australian researchers with a competitive advantage through data.
In this presentation, Kathryn Unsworth introduces the ARDC Skills Landscape. The Landscape is a first step in developing a national skills framework to enable a coordinated and cohesive approach to skills development across the Australian eResearch sector. It is also a first step towards helping to analyse current approaches in data training to identify:
- Siloed skills initiatives, and finding ways to build partnerships and improve collaboration
- Skills deficits, and working to address the gaps in data skills
- Areas of skills development for investment by skills stakeholders like universities, research organisations, skills and training service providers, ARDC, etc.
contact@ardc.edu.au
Unsworth, Kathryn (orcid: 0000-0002-5407-9987)
skills, data skills, eresearch skills, community, skilled workforce, FAIR, research data management, data stewardship, data governance, data use, data generation, training material
HeSANDA Monash Node Workshop Content
Slide presentation for a HeSANDA workshop delivered on January 1, 2023, which provides the audience with a broad understanding of the HeSANDA program, including Health Data Australia (HDA).
What is HeSANDA:
The Health Studies Australian Data Asset (HeSANDA) is a national program that makes...
Keywords: health data, clinical trials, HeSANDA, Health Data Australia
HeSANDA Monash Node Workshop Content
https://zenodo.org/records/10275272
https://dresa.org.au/materials/hesanda-monash-node-workshop-content
Slide presentation for a HeSANDA workshop delivered on January 1, 2023, which provides the audience with a broad understanding of the HeSANDA program, including Health Data Australia (HDA).
What is HeSANDA:
The Health Studies Australian Data Asset (HeSANDA) is a national program that makes health and medical research data easier to find. It facilitates access, sharing and reuse of research data. This results in a reduction in research waste, improvements in researcher collaboration, and an opppotunity ti answer new research questions. It aims to support more efficitent and effective research to help improve health outcome.
Amany.Gouda-Vossos@ardc.edu.au
Monash Partners
Monash University
health data, clinical trials, HeSANDA, Health Data Australia